ORPHA:168816
Peritoneal inclusion cyst
Also known as: Benign multicystic peritoneal mesothelioma · Multicystic mesothelioma · Multilocular peritoneal inclusion cyst · Peritoneal cyctic mesothelioma
Publications
1,360
Trials
0
Interventional, condition-specific
Researchers
1,066
Distinct authors in sample
Gene link
—
Readiness
1/6
Stages with a signal
Clinical definition (Orphanet)
Peritoneal cystic mesothelioma is a rare benign tumor characterized by the formation of intra-abdominal multilocular cystic masses.
How rare: How common this is has not been clearly measured.
Cross-references
Joined from Mondo / Orphanet. MeSH labels may enter searches; UMLS / OMIM / NCIT are stored for reference.
- MONDO:0006363
- UMLS:C1334818
- NCIT:C6536
Additional Mondo synonyms (6)
multicystic mesothelioma · multicystic mesothelioma of peritoneum · multicystic mesothelioma of the peritoneum · multilocular peritoneal inclusion cyst · peritoneal cystic mesothelioma · peritoneal multicystic mesothelioma
Research stages
Trial readiness signals
Where this condition sits on an open-data research pipeline — not how close a treatment is, and not medical advice. Empty stages often mean “not in these databases under this Mondo ID,” not “impossible.”
1/6 stages with a signal
Research-stage checklist from open sources (GenCC, literature, Monarch when enriched, ClinicalTrials.gov). Not a prognosis or care recommendation.
- Gene identifiedNot found
No GenCC disease–gene assertion in this build
- LiteraturePresent
1,360 matched papers (650 in last 10 years) Source
- Phenotype characterisedNot checked
Not yet enriched from Monarch / HPO
- Animal modelNot checked
Not yet enriched from Monarch / Alliance
- Orphan designationNot checked
FDA/EMA orphan-drug designation not enriched yet
- Interventional trialNot found
No matched interventional trial under our ClinicalTrials.gov rules
Biology
Genes and phenotypes
Gene–disease validity from GenCC, plus phenotypes and animal models joined from Monarch Initiative via Mondo ID — not a clinical diagnosis aid.
Do we know what causes it?
Not yet — the cause hasn't been pinned down in GenCC.
No strong gene–disease assertion joined for this Orphanet entity.
Phenotypes (Monarch / HPO)
Not enriched in this build — Monarch phenotype joins were not run for this record.
Animal models (Monarch / Alliance)
Not enriched in this build.
Literature
Is anyone studying this?
1,360
1,360 papers have been published on this condition. That is a real research literature — still far smaller than common diseases (breast cancer: over 700,000 papers). Median papers in the last 10 years for a rare disease in this dataset (publications denominator n=5449) is 41.
1,360 papers since the earliest indexed year in this search — median last-10-year count for a rare disease in this dataset is 41 (publications denominator n=5449).
650 in the last 10 years · low confidence
Phrase hits: 1,360 · MeSH hits: 0
Who's working on it?
1,066
Distinct author names in 200 sampled papers — named people below.
Who's working on it?
No interventional trial matched this name; these authors publish on it in the sampled literature — a practical starting point for contact.
- 01Sommariva A3 papers · 2026
Unit of Surgical Oncology of Digestive Tract, Veneto Institute of Oncology IOV - IRCCS, Padua 35128, Italy.
Papers in Europe PMC - 02Agha S2 papers · 2021
Faculty of Medicine, Aleppo University Hospital, University of Aleppo, Aleppo, Syria.
Papers in Europe PMC - 03Al-Saghir M2 papers · 2025
Obstetrics and Gynecology, Corewell Health William Beaumont University Hospital, Royal Oak, USA
Papers in Europe PMC - 04Alshutaihi MS2 papers · 2021
Division of Neurology, Department of Internal Medicine, Aleppo University Hospital, Aleppo, Syria. sami.shtayhi.8@gmail.com.
Papers in Europe PMC - 05Carr NJ2 papers · 2026
Peritoneal Malignancy Institute, Basingstoke and North Hampshire Hospital, Basingstoke, UK.
Papers in Europe PMC - 06Chaouch MA2 papers · 2025
Department of Surgery, Monastir University Hospital, Monastir, Tunisia.
Papers in Europe PMC - 07Chirieac LR2 papers · 2026
Department of Pathology, Mount Sinai Hospital, New York, NY, United States.
Papers in Europe PMC - 08Di Giorgio A2 papers · 2025
Surgical Unit of Peritoneum and Retroperitoneum, Fondazione Policlinico Universitario Agostino Gemelli IRCCS, Rome 00136, Italy.
Papers in Europe PMC - 09Edens J2 papers · 2020
St. John Hospital and Medical Center, Detroit, MI 48236, USA.
Papers in Europe PMC - 10Franin I2 papers · 2023
Ivan Franin, Sestre Milosrdnice University Hospital Center, Ljudevit Jurak Department of Pathology and Cytology, Vinogradska cesta 29, 10000 Zagreb, Croatia, franin.ivan@gmail.com.
Papers in Europe PMC
Clinical research
Is a treatment being tested?
0
interventional trials for this specific condition
No interventional trial testing a treatment matched this specific condition name on ClinicalTrials.gov (observational studies and pan-disease registries are listed separately when present).
Data as of 27 July 2026
No matched interventional trials. This is true for 73% of diseases in the trials denominator (5114 of 7003). Here are the researchers publishing on it.
low confidence · 36.5th percentile (trials denominator)
Recruiting interventional trials
From the matched ClinicalTrials.gov set
No interventional trial testing a treatment was found for this specific condition name on ClinicalTrials.gov.
See who's working on it — people publishing on this disease are often the practical next contact when no trial is listed.
Where to find support
We do not yet link condition-specific patient organisations. These umbrella groups support undiagnosed and ultra-rare families:
India — NPRD
Last verified 2026-07-26This ORPHAcode is not on our curated NPRD list (direct or Mondo-parent match). That does not decide clinical eligibility; families in India should ask a notified Centre of Excellence about current coverage.
Hand-curated for this project. ORPHAcode mappings are best-effort and may be incomplete or imprecise for umbrella categories. Parent (Mondo) matches mean the policy lists a broader category — confirm eligibility with a Centre of Excellence. Financial entitlements summarised from public policy statements and may change. This is not official government guidance.
How we counted this
Europe PMC query (preferred label + any corrected label + Orphanet and Mondo exact synonyms, stoplisted; unioned with resolved MeSH labels when available). UMLS / OMIM / NCIT cross-references are stored on the overview but are not added to the query string.
"Peritoneal inclusion cyst" OR "Benign multicystic peritoneal mesothelioma" OR "Multicystic mesothelioma" OR "Multilocular peritoneal inclusion cyst" OR "Peritoneal cyctic mesothelioma" OR "multicystic mesothelioma of peritoneum" OR "multicystic mesothelioma of the peritoneum" OR "peritoneal cystic mesothelioma" OR "peritoneal multicystic mesothelioma"
ClinicalTrials.gov query (quoted phrases + MeSH via query.cond, plus recall-expansion terms when used):
"Peritoneal inclusion cyst" OR "Benign multicystic peritoneal mesothelioma" OR "Multicystic mesothelioma" OR "Multilocular peritoneal inclusion cyst" OR "Peritoneal cyctic mesothelioma" OR "multicystic mesothelioma of peritoneum" OR "multicystic mesothelioma of the peritoneum" OR "peritoneal cystic mesothelioma" OR "peritoneal multicystic mesothelioma"
Study-type breakdown: 0 interventional · 0 observational · 0 expanded access. Only interventional studies enter the trial headline.
Query health: ok — strategies attempted: phrase; with hits: phrase
Run this search on ClinicalTrials.gov
Confidence reasoning
- Preferred label is multi-word and distinctive
- No synonyms dropped by stoplist
- No label/synonym collisions with other diseases in this corpus
- Publication count (1360) is extremely high with unknown/missing prevalence — treat as possible over-matching, not proven research intensity
Ingested 2026-07-27T08:31:06.973Z